Tuesday, March 24, 2015

I took the Nativity Set out to the garage. Mom said she was glad the family went home because it was awfully cold for them to be outside.  She did say she missed them, though.

It is so frustrating to have mom remember such trivial things like what she likes for breakfast and forget the more important things like who her kids are. Many days now she asks who I am when I call on the phone. Sometimes, she does so when I visit. What's even more sad is that she knows something is happening to her and she tries to keep you from knowing. She says things like "I was just checking to see what you would say…" or laughing when you answer - since then she already has her answer.

Mom has gone way beyond the color coding of her dead bolt and front door lock. She's gone beyond the needing reminders and writing the top 3 called phone numbers on her trash can next to her chair. She's gone beyond not understanding how to turn her TV on and off without the little slip of paper taped above the buttons telling her what to do….

I wish I had a little piece of paper telling me what to do. I do not want to be the person that has to make a decision about her car, the timing for her to move to a nursing home, or finding her gone. I don't want any of it but sometimes we don't get what we want…. so I will continue to be a phone book thief, chief cook and bottle washer, repetitive question answerer, and daughter as long as I can and as long as she is safe because I do love my Mom.

3 comments:

  1. This is so beautifully written Deb. I physically feel each sentence is a dagger which penetrates my heart, my mind, and my soul a little deeper with each, "gone beyond . . ." you present.

    I too wish you had a "little piece of paper" with specific directions. I know though that you will be given the answer in time. One thing that is clearly evident, you do love your Mom, and although this disease is slowly taking your Mom's memories, I am sure as only a mother can be, that her love for you is constant. Blessings.

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  2. What a great daughter and friend you are Deb. You are taking care of your mother like any Perfect daughter would do. Moms are important to us and seem to have all the word to say and all the love to give. There comes the day when we have to take care of our parents, and even though we are unsure if we are comfortable with it...we go along with it because of the live that we have for our parents, especially our mothers.

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  3. I agree-- this is so beautifully written. I do think someday you should consider trying to publish a series of essays or a short book based on this blog. SO many people who are helping loved ones in this way can relate to the stories you share. I love the "gone beyond" lines. They really give us concrete examples of how things have progressed for your mom. The "little piece of paper line" is painfully poignant. I will be following news of Alzheimer's research even more closely now that I have read your blog and know on a more intimate, personal level what this disease does to people and families. Thank you so much for sharing your stories all semester. It has been a gift of insight for us all.

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